Mothers' perception of the neuropsychomotor development of their children liver diseases: a qualitative study
DOI:
https://doi.org/10.17267/2238-2704rpf.v11i4.4121Keywords:
End Stage Liver Disease, Developmental Disabilities, PerceptionAbstract
INTRODUCTION: Much is known about the impact of liver diseases on children's cognitive, motor, and social development. However, knowing what mothers think about their children's development and the aspects they consider most important are issues that have been little explored. OBJECTIVE: To investigate the perceptions of mothers of hepatopathy children about the development of their children. METHOD: This is a qualitative, descriptive-exploratory research conducted with 12 mothers of children (up to 6 years of age) with chronic liver diseases, followed by a reference center in Bahia, Brazil. A narrative interview was conducted to collect the data, later transcribed and processed according to Bardin's analysis of the category thematic content. The perception of mothers about the development of their children was compared with the results obtained in the evaluation with the Denver II screening test (TTDII) of their children. RESULTS: There is an agreement in most evaluation results for suspicion or risk of neuropsychomotor development, demonstrating that these mothers can identify typical and atypical behaviors. The maternal statements are of overprotection and softening of the disease process and self-confidence and superiority as an attitude of defense in an attempt to conceal the feeling of fragility in the face of the disease. CONCLUSIONS: The mothers' perception of their children's development was in line with the TDDII results. Mothers and children need multi-professional follow-up for better therapeutic management and neurodevelopment, as well as family support.
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Copyright (c) 2021 Juliana Costa Santos, Nilo Manoel Pereira Vieira Barreto, Hortência Souza Santana, Sumaia Midlej Pimantel Sá, Luciana Rodrigues Silva
This work is licensed under a Creative Commons Attribution 4.0 International License.
This work is licensed under a Creative Commons Attribution 4.0 International License.
